Wednesday, September 17, 2014

Reversal

Monday 8th September the day had finally come to have my Ileostomy reversed. It had been a day I had been waiting for since the 25th April 2012..... 866 days. I write this just over a week later in what I can only describe as one of the hardest weeks I've had in a few years.

Surgery itself was pretty successful, or so my surgeons tell me. I went in about 8am, after a few medicines and antibiotics I was put to sleep not quite knowing if I would wake up with our without a pouch. In the preceding few months before surgery my surgical team had discovered a block in my large bowel and were unsure to what was causing it.

Due to that, instead of the small loop stoma takedown I was needed to be cut back open in order to investigate what was happening.

I woke up just after midday and I remember just laying in the bed falling in and out of sleep. Usually in that scenario I would have quickly checked if I had a pouch still but in this case I didn't. For once I was content on either option and whatever was needed was there. I believe it was about an hour later my surgeon saw me and told me that it was a success and they reversed the stoma, as well as removing more of my large bowel.

The next few hours I drifted in and out of sleep repeatedly, something that followed throughout the night. Although I tried to stay awake and watch the first episode of big brother I couldn't do it..... yes I do realise that maybe, just maybe big brother put me to sleep not the medication.

The next day was fairly uneventful, I went for a walk with the physio team and apart from that I was fairly contained to my room due to having drips and a catheter still in. The problem with the that is you can't get a t-shirt or pants on so if you want to walk then usually you have to give the patients a show by exposing your behind.... something I am sure the residents of ward 7 were glad I didn't do.

Really that Tuesday I spent just anxious, anxious that nothing would pass like last time. Anxious that again I would go through that excruciating pain which would result in another stoma. But Tuesday night I finally had my first bowel movement, I'm pretty sure I hadn't been that excited about this since I was a child.

The remainder of the stay in hospital was exceptionally uneventful. Drips came out, catheter came out, wound got cleaned and I just tried to start walking. Oh and the big thing which was I was constantly dashing to the bathroom, so apparently it takes quite a while for your large bowel to get off holiday mode and into work mode.

On Thursday, day 4 after the operation I was discharged from hospital to recover at home. For those following that is a new personal best in terms of hospital stints.

This last week has now been recovering at home, which has been really tough. The first few days I think I went to the bathroom 20+ times and there were points that I wondered if I had made the biggest mistake of my life with getting the reversal done. But after Sunday and trying Imodium things have suddenly improved greatly, suddenly now I can see that things will get better and my body will adjust.


Wednesday, February 19, 2014

Out of hospital in a record 5 days

After what is my shortest stay ever in Peter Mac I was released from hospital on Tuesday.... 5 days in total. This was due to the fact that the hospital run a great program which is designed to get people out of hospital quicker.

The program starts a day before and day of surgery where I was required to drink some carbohydrate drinks to keep my body healthy and prepared for the recovery. The program then has different goals everyday, an example being:

Day of Surgery

  1. Drink 2 carbohydrate drinks before 6am
  2. After surgery have a high protein drink / dinner
  3. Get out of bed for 1 - 2 hours
Day 1
  1. Sit out of bed for 4 hours
  2. Walk twice during the day (50m each time)
  3. Have a shower
  4. Have intravenous fluids stopped
Day 2
  1. Remove Catheter...... YAY!!!!!!!!
  2. Walk 3 times (50m each time)
  3. Keep up fluids
Day 3
  1. Walking around freely and going to the bathroom unassisted
  2. Eating and drinking normally
  3. Stoma functioning as expected
  4. Pain in under control
Day 4
  1. Prepare to go home
Obviously not everything we did was in that exact order but it was pretty close. The parts that are highlights for me are:

Surgery Day - Get out of bed
After Surgery
So this was my first failure, I sat up out of bed with assistance from my nurse. After sitting on the bed for over a minute and waiting for the light headedness to disperse I stood up to walk to a seat which was 1m away. I got to the seat, sat down and felt incredibly light headed like I was going to faint. After a quick blood pressure test my blood pressure had dropped significantly, the decision was quickly made to get me back into bed. 2 minutes out of bed achieved, 1 - 2 hours out of bed failed

Day 1
On day 1 I managed to get out of bed, have a shower by myself and walk around the ward with the physio. I did spend a lot of time out of bed until the pain started getting worse so I got back into bed. 
My Intravenous drips stayed connected to me on this day mainly because as a preventative because of my past history I was getting quite a number of Anti-Biotics pumped into me.

Andrew and Gemma visited me today which was the day where I was in the most pain so no doubt I wasn't that much fun. 

Day 2
Day 2 started off the best, at 6am my nurse walked in and told me the catheter was coming out. For anyone who has had a catheter it isn't the best experience of it going in or coming out but for 2 days I had this feeling like something was pushing up against my bladder and it was really uncomfortable. I first felt this directly after surgery when I was in the recovery room, I asked the nurse if I had a catheter in and she told me I did. I remember thinking that they hadn't inserted it correctly and had missed my second bladder which was my Japenese bladder.... I don't know if this was because of really good drugs, me thinking about work, or the fact my cancer has a Japenese variant. 

Anyway having the catheter out was going to be a good thing, the nurse did a great job and within 5 - 10 seconds it was removed (I think the quicker they do it the less painful it seems)

On Day 2 I also had all my intravenous fluids stopped and was walking around by myself. Obviously I still had pain from being cut open but it was quite significantly less than the day before. That was probably an advantage for Mel who visited since I was a bit more perky than I was to Andrew and Gemma the day before

I'm a Falls Risk
Day 3
Today was more exercise, ensuring I was eating well, meeting with my wonderful stoma nurses and preparing for discharge the next day. Jamie visited me in hospital today, highlight of the day was seeing Jamie needing help from the nurse to get a gown on. 

Day 4
Home day!!!! Today we just wrapped things up from making sure I could manage the stoma, taking the wound care off the wound and getting my medication from pharmacy. At about 1:30pm my parents came and I was on my way home. 

So now I am home slowly recovering ready for the next surgery which I am told will be in about 3 months (so could be 3 - 6 months)


Thursday, February 13, 2014

Happy Valentines Day

Two years ago my large and small bowel had a falling out. After living peacefully with each other for 30 years the small bowel finally had enough. The large bowel was just half the man he used to be so they needed a break. Last year they tried to get back together but things didn't work because they didn't gel.

Today I am celebrating Valentines day by finally having my small bowel and large bowel re-united. I am scheduled for surgery this morning where my surgeons will join my small bowel and large bowel together. After that they will create a "Loop Stoma" which is effectively another stoma but further up on another part of the small bowel. The loop stoma means that output still flows through to my Ostomy pouch whilst giving the large bowel and small bowel time to heal. Later on the year I will have the loop stoma taken out so output flows normally through my body.

Here I sit nervous waiting for the surgeons to ruin my body again.